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    http://www.pierrerobin.com   » Chase's Story - Personal account of one child's experience of this condition. Includes photographs.

    http://www.cafamily.org.uk/Direct/p24.html   » Contact a Family: Pierre Robin Syndrome - Main features of the condition and possible causes.

    http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome   » NORD - Pierre Robin Syndrome - Sample report, plus links to organisations. [Fee required for full report]

    http://www.pierrerobin.org   » Pierre Robin Network - Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.



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