» Elizabeth's Page - Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
» FightSMA - Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
» GeneClinics SMA Information Page - Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
» Ilsa's SMA Resources - A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
» Our SMA Angels - Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
» The Sean W. Venezia Foundation - Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
» SMA Angels Support Site - A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
» SMA2 Ian Paul - I am two years old and I have SMA2.
» SMA Support Inc. - A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
» Theo's Story with SMA - A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
» Tori's Buddies - Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
» Twins with SMA - Sam and Alex Bolton - twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.
» Washington University of St. Louis: Neuromuscular - Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
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