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German  (7)  


    http://www.our-sma-angels.com/elizabeth/   » Elizabeth's Page - Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.

    http://www.fsma.org   » Families of SMA (Spinal Muscular Atrophy) - International support group and resource center for this disease, includes current research.

    http://www.fightsma.org/   » FightSMA - Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.

    http://www.geneclinics.org/profiles/sma/index.html   » GeneClinics SMA Information Page - Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.

    http://www.smaangel.com   » Ilsa's SMA Resources - A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.

    http://www.jtsma.org.uk   » Jennifer Trust for Spinal Muscular Atrophy - Providing support, information and research news for UK families.

    http://www.our-sma-angels.com   » Our SMA Angels - Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.

    http://www.smafund.org   » The Sean W. Venezia Foundation - Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.

    http://www.smaangels.com   » SMA Angels Support Site - A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.

    http://www.geocities.com/ianpaul2/   » SMA2 Ian Paul - I am two years old and I have SMA2.

    http://www.smasupport.com   » SMA Support Inc. - A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.

    http://www.smafoundation.org   » Spinal Muscular Atrophy Foundation - Information on SMA, and the latest updates in research, treatment and funding.

    http://www.mysunrise.ch/users/af.mast/   » Theo's Story with SMA - A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.

    http://www.fightsma.org/index.php?fam_tori   » Tori's Buddies - Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.

    http://www.twinswithsma.co.uk   » Twins with SMA - Sam and Alex Bolton - twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.

    http://www.neuro.wustl.edu/neuromuscular/synmot.html   » Washington University of St. Louis: Neuromuscular - Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.



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