» Bennett Children's Foundation - Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
» Ben's Dream - Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
» Children's Medical Research Foundation - Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
» Frankiepants - Personal site about a child with this disorder. Provides details about the condition.
» MPS III - Information, including the causes, different forms, the inheritance and how the disorder progresses.