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    http://www.claritystudio.com/helpachild/   » Bennett Children's Foundation - Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.

    http://www.bensdream.org   » Ben's Dream - Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.

    http://www.curekirby.org/   » Children's Medical Research Foundation - Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.

    http://www.frankiepants.com   » Frankiepants - Personal site about a child with this disorder. Provides details about the condition.

    http://www.mpssociety.org/content/4039/MPS_III/   » MPS III - Information, including the causes, different forms, the inheritance and how the disorder progresses.

    http://www.alifeforelisa.org/   » The Sanfilippo Children's Research Foundation - Canadian based charitable group founded by the parents of Elisa Linton.

    http://www.specialchild.com/archives/dz-034.html   » Special Child: Disorder Zone Archives - Sanfilippo Syndrome - Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.



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